And god help them if I come across another article that says something like this. I too had seen some of the pieces, and I thought it might be referencing you, but I wasn't sure.
First, I have no truck with people who talk behind other people's backs. If I want to spend my time with the mean girl 8th grade middle school mentality, I'll start teaching again and at least get paid for it.
Second, I don't like people who flaunt their ignorance. The top hit for a Google search with just the term "lipedema" is a link from Cleveland Clinic, and pretty much everything at the website supports your understanding of the disease as you have explained it over many months.
https://my.clevelandclinic.org/health/diseases/17175-lipedema
Here's to you getting the treatment you need, so that you can live the life you want to live and care for your daughter well into her adulthood.